Evolution of the Fair Go infographic with protopian future elements

Aura / Care proposals

Dementia and aged care

A proposed digital memoir and care record built around the person, their everyday preferences and their chosen carers. Its usefulness would need to be tested in daily care.

Explore the care record Read the research questions

Build the record around everyday life

Life story

Chosen photographs, places, music, relationships, values and family memories.

Daily care

Routines, preferences, sources of comfort, sensitivities and the support the person wants others to understand.

Changes to discuss

Daily function, distress, sleep, recovery, stress, social connection and support needs and the context around a change. Optional reflection or sensor summaries would be reviewed with the care team.

For example, a new carer could review the person's preferred routine, ask what is right for today and record a correction. The research question is whether that record is accurate, wanted and useful in the care actually provided.

Keep the person in control

Support the person to communicate choices and review what others add. Involve chosen carers through an appropriate consent or lawful decision-making process. Family knowledge can contribute to the story; it does not give automatic control over it.

The design needs usable correction, export and withdrawal processes. A digital record must not become surveillance, a diagnosis inferred from behaviour or an extra task imposed on the person and their carers.

What a dementia-care trial should ask

These are outcomes to investigate. The study sequence, professional responsibilities and technical requirements live in the clinical pathway.

Fit the record into existing care

The proposal would need to work with GP conversations, medicine records, disability supports and aged-care services such as My Aged Care. Planning must include younger-onset dementia as well as older people and their carers. A memoir or research study does not itself establish eligibility for a service or funding.

NDIS: disability support information.
Clinical pathway: funding and health-system context.
Aged-care bills and safeguarding covers delivered care, charges and complaints.

For the broader reflection and learning proposal, see Aura Genesis Protocol.